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As I told you more than once, these children come without instructions and sometimes parents have to invent, create or build all sorts of accessories to help our children.

In this case I need your help: I \u200b\u200bwould get to Neil a call CREEPSTER crawlers CRAWLER which I am attaching photos but do not know where to buy it.

I leave a few examples of how useful it can be:

http://www.youtube.com/watch?v=kkrRTlNGMG4

http://www.youtube .com / watch? v = X_VY86XjKBo

PLEASE ayudamne to locate. GRACIAS.Mi body and especially my back would be alleviated by this invention.

take abuse and also if you know where to buy the SWIM DanM COLLAR.

AGAIN THANKS A MILLION.

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few days ago, Neil's grandmother went to one of those talks during which advertising can buy various appliances (cooking, wellness, ...) and as I am "a little restless head" occurred to me that I could buy a handholds usually sold to facilitate the entry and exit from the shower or bath. This view that everything has its uses and more in cases like Neil to be figuring out sometimes not to turn our house 100% in a rehabilitation center. Let us recall you that we are still a normal family and are the home for rehabilitation and therapy sessions. A home should be as convenient and useful unmarked continuously differ.
Turning to the invention is very useful: you can use to hold while Neil is sitting in the bathtub, a favorite that soon becomes a pool of colored balls, rubber toys , .... I also thought I use it to keep some positions (standing, sitting on my knees facing the wall of the kitchen. It's like a bar so she can go to practice (where) the movement of being on his knees and lifted one leg after another. Well as you can see only needs to have a little imagination and take advantage of any common strategy to work with Neil.

This time after a well deserved bath, I decided to glue it to the bathroom wall and support it while I was drying my hair. Beware or and not mislead but little by little Neil is taking aware of what they can do and it also helps me in my task as in many times of the day and more, in this case, due to dry hair my two hands are needed.

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As I said many times Neil loves going to cole. This year was the second year that came to his cole, Mende. Each year is couple tic ular and full of new adventures and friendships. His ally in all activity was Aridi but also all others who never failed to spoil her and wrap her instance during the cole (and even outside when invite her to fulfill and she can have fun.) They are worthy of admiration tion and an example to follow because they do not look at the DISABLED ity of Nerea quite the contrary, in his smile, laughter and j desire Ugar and learning. Hast to tell you "copy" in the best sense of the word.
I think is never satisfied with their status and sets its own goals. For example this weekend we went to eat with a few guys mine in Brazil that are here on vacation, she had co mido but sat beside me and with his brother and cousins \u200b\u200bat table . I called dish, fork and wanted him to take rice as the main dish was " Freixas." Although we had there the cuc hara adapted she was determined to do everything by herself , refused my help and if you fell a few grains of rice, she would catch s co n his other hand and placed them in that way to bring the spoon to her mouth. I was super proud of the effort she puts her things and do not always look so helped. Obser is, go back the other pair to be higher (sometimes I say, "You're a baby, you're babando , older children do not" and she down system cally.

Closing this parentheses, I will say that with the delivery of letters we had of course a festival in which children in their class p Participate and she. He a little note and that was because I had to mourn but it des was a success: the representation, the videos of her and of Daniel , his companion disabled, the delivery of a gift by part and the teacher and the PT , the flower for mothers, ... .

I think as always the photos will demonstrate better than my words how well we've had, I Adrian and his grandmother.

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LETTER FROM A PC TO CHILD CARE FOR MY MAMA

From Argentina came to me and many other great encouragement to recover and be better. I follow exactly my own therapy to take life minute by minute and I will tell you that yesterday evening I and Nerea were hidden under the covers of my bed practicing a national sport called SIESTA. Almost three hours, quite an achievement. note and practice them coming pearls.

Today I opened the blog and Patu mom invited me to read a special letter from a child with cerebral paralysis to his mother. A lesson in what really account.

Hello Mami: That if it be a surprise for you je, je . I am writing to reassure and let you know all the things you keep dudas.Aunque not know where to start ... So many things I want to know! ... Look ... every day I love you more and more as each sunrise is a battle won by your warrior and you are my queen. "You know something? When I wake up with a kiss, it's like Epiphany or Papa Noel come, when you hold me I feel so blessed that only for that kiss and those hugs despertarme.Sé worth that much to see me suffer so, but suffer no more, because I want to tell a secret ... look, all day and night I have at my side an angel who cares for me and explained everything that I do not understand, is like having my professor and doctor particular.La truth is that it is a little heavy too, but knows how to do magic, because when I want you to learn something ... blemish, cross out ... He gets!. The other day when I brought out for a walk was like that summer day last year that I did you get to the balcony, look to the sky and was like seeing your eyes, ... "Said the angel up there we would go two-.Sé give you a lot of work every day and sometimes I do not behave as it should, but ... bear with me porfa do not get angry ... It annoys me as I am and not be able to hug and kiss other boys do! ... So I grabbed the anger and temper tantrums, but mami, you know that is not with you Hey ... Ugh, when I do it over the Angel lecturing me and my anger is more with him than you, of course, you do not see it as perhaps not entiendas.Le asked my angel why am I so ... and do you know? I said that I and all those like me, we are special and so we come to this world for others to learn from us and recognize how fortunate they are, the Angel says we are the rays of light of hope on earth. Mami when I look, how proud I am of you! .. And how beautiful you are!. My Angel tells me that moms like you you are the stars more light in the universe, ho!, How wonderful! I son of a star in the sky!. Sometimes Mommy mourn and I see you know it's for me. not cry mommy, you know? It is better to be and I can see you and adore you not be here ... I exchange by anyone in the world!. I know I can not play like other children and that as the days go by you and me together we grow older, but for me is always that first day I saw first baby and I consider the most fortunate for having brought you to this world.The Angel is a little heavy, not talking to me all day, always with new things and always giving me these magical hugs me relieve pain and soothe me. He once told me that you and I would enjoy a special life in a special place where everything is beautiful and peaceful and where I can play and run with you as do other children, ho!, Mami worth !, I hope it's soon! Yesterday I asked the angel when he was to be, (you have to understand I'm a little impatient), but I got bad news ... said that there is still much ... So if you did not understand. Do you know? I love you and when I look closely, stroking, I see the blue sky very nice in your eyes, but tears place them at times as if it might rain, so no mommy cry ... Not even hidden! Okay?. The Angel taught me to see your beautiful heart and soul sky, is beautiful!, How I wish that thou shouldst see mami!. Mami sorry for tantrums, I give you work and suffering caused to you and me, let me be that light and hope that I have seen into your heart the other day, let me be your comfort when I look at and understand that every look me or cry that I take is to hold you, kiss you and say I love you mommy . How proud I am to have a mommy like you! ... On top stars. Mami the angel says I'll understand better once you read this letter that one had to write and get it in your eyes, it was no coincidence, was the happy magic of this Angel!, He says that we have to enforce the one's love to reach others. Angel also says that this letter is not just for you mami ... how annoying! ... That is for all moms like you ... something of a tribute, this angel always complicated words! Mami here I say hand, not everything I wanted, but I LOVE YOU! (This word says Heavy Angel says all), jo!, annoying not know well what it means to live with an Angel!. Besos Mami .

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For reasons beyond my control days ago rather a month ago I saw forced to make a decision than ever I thought I had to make so quickly, my son Adrian and I went to my doctor and told him I could not go, that the body was KO and that most other factors were taking their toll on my soul and that I could not tolerate as in this continuing struggle one can not collapse. preferred stop before breaking since damages remedy could be worse. So while at first I felt bad about leaving my job (my only escape before my fight against cerebral palsy) and I saw grudging all value if it is true that health is everything and I had to pull myself . As I always had the unconditional support of my family, but also layered my mom and me complicate things a bit. Children can not be disconnected any food processor and put them back up when one considers it appropriate. We must be on foot barrel and it is true that it is not easy to recover in record time almost four and a half years of struggle, physical effort, fatigue, sleepless nights .... penalties that although it away from the best possible disappointments look like a footprint you are leaving, ... good is complicated.

In those moments is when a mother realizes that life and the integration of their daughter at risk if she is not business as usual. I will say that for the first time, being in bed with my daughter Nerea by my side, I cried. I do not know if it was rage, despair , weariness and sorrow .. I do not know, but I was too human and vulnerable as it ever was during my 35 years a woman lying forward, warrior and a fighter to the core.

overwhelming and beautiful thing is that at that time, I asked Neil : "Since we're alone at home and I am so dizzy, who I will care for me?"

Do you know what I said Nerea ? (Which I do not know because you have all the understanding of the world): stroked my cheek and said to herself to tell me: "me, I'm going to take care.

You can not imagine the rollercoaster of emotions that emerged from every pore of my skin, which felt privileged to have a girl so special and not just because of their disability, that injection of poise and optimism gave me with that response.

So I put the batteries, I took all my children cuddle, rested, put the first and I decided to live and not day to day but minute by minute to not miss anything and emerge stronger from this downturn . Perhaps

and very often is that I will be more time decay because I am human and I am demanding to myself too but I'm sorry, I'm well and I think so far everything I've done has obtained its fruits.

Thanks for being my fans and also give me your support your way.

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Thanks to a special person

Fortunately I must confess that there are people who know anything without knowing more importantly give you: love, tenderness, love, ... and lots more things you can not even define how valuable they are. It is an honor for me as a mother and especially since my little girl "married" for life with disability to see how little by little, day by day, many people "fall in love with her." I do not know if it's your smile or your eyes fragile yet sweet or Their curiosity and eagerness to learn, ... what matters is that you have a fan club, a group of people more beautiful inside than outside and they are becoming in their fairy godmothers. The care, the Shagged, kiss the colean, enjoy every minute spent with her and not realize that the work they are doing is important: they are encouraging my daughter, we are offering a love that I hope many others children parked and isolated by their disability taste, communicate with it, it dares to challenge them to make you laugh the most, for ening its Erpo cu paseándola, dancing and stand up to the foot of canyon all she asked .... Without asking anything in return.

These people would not mind letting them take care of my daughter if I no longer could. Hopefully all schools, all hospitals, the general public was exclusively populated by people how are you people: those who give everything without expecting anything in return, those who see beyond the physical appearance, which although they are exhausted always have a free moment to go when needed, which for many problems they are wearing a smile as uniform that although there is nothing new open Nerea's blog to see his picture and explain to your family and friends they stole a little bit of heart with just 4 years ...

I think I can never thank all those people and their bit makes me feel good, me and my daughter, I do believe more in myself and in this fight and make me easier to attach and live with this luggage so special that always carries with her.

I will not say his name because I will not marginalize or forgot arm of any of the people who have been, are and will be so fundamental to Neil in particular, in the process of rehabilitation. That special person will know is this tribute is for her to see est as photos. GRACE S